Posts tagged with "rheumatoid arthritis"

Michael Kuluva featured inside 360 MAGAZINE.

CREAKYJOINTS

PRESENTS TUMBLER AND TIPSY BY MICHAEL KULUVA VIRTUAL PRESENTATION OF THE SPRING/SUMMER 2021 COLLECTION DURING NEW YORK FASHION WEEK

Global Audience Invited to Engage At Home to Celebrate Accessible Fashion

UPPER NYACK, NY (August 25, 2020) –CreakyJoints®, a Global Healthy Living Foundation digital patient community for people with all forms of arthritis, today announces it will present the Spring/Summer 2021 Tumbler and Tipsy® by Michael Kuluva collection timed to New York Fashion Week. As a designer with rheumatoid arthritis (RA) and CreakyJoints member, Michael advocates for social distancing and following local guidelines to stay safe and reduce the spread of the COVID-19 virus. Therefore, “The Newest Normal” collection event –  filmed in Canada where Michael is residing during the pandemic — will be presented virtually and premiere on YouTube on September 16, 2020 at 8pm ET. Immediately preceding the premiere, Michael will participate in a live #CreakyChats on Twitter to discuss the inspiration behind his collection.

As the Spring/Summer 2021 Tumbler and Tipsy® virtual show starts, viewers will meet arthritis advocateEmily Sirotich, whose sleep is disturbed by pain and is seeking support from the CreakyJoints website. It won’t be long before she crosses path with Michael and gets magically transported to the collection presentation. Once there and in partnership with Cherrytree Records, her journey will be punctuated by music from global music superstars including Lady Gaga, Sting, Shaggy and more. 

“I’m thrilled to bring my COVID-conscious collection to a global audience because being physically distant does not preclude joint celebrations,” said Michael Kuluva, designer of Tumbler and Tipsy. “My new collection was inspired by my desire to inject light, color, and happiness into our world, which may feel smaller as we hunker down to protect each other during the pandemic. When I get dressed in something that looks amazing and feels great, it sets the tone for the rest of my day. I hope my collection inspires self-care.”

“My involvement in the Tumbler and Tipsy Fashion Show highlights the importance of bringing lived experiences into the spotlight.  Arthritis advocacy can take many forms, and it is inspiring to see Michael Kuluva showcase the experience of arthritis patients on the world-stage,” said Emily Sirotich, a PhD student at McMaster University in Hamilton, Canada and a member of the Canadian Arthritis Patient Alliance, CreakyJoints, and the COVID-19 Global Rheumatology Alliance.

The Newest Normal

Michael continues to innovate, filling The Newest Normal with comfortable clothing that is great for lounging around in, but stands out from the crowd with high volume colors and glam touches that will make the wearer feel confident. Always inclusive, Michael’s clothing is easy to put on and many of the collection pieces will have hand-painted, glow-in the-dark details thoughtfully placed to emphasize where people living with arthritis experience pain – on the inside and out.

“The pandemic has upended everyone’s lives, particularly those who are at increased risk because of underlying conditions or living with a chronic disease, like I do. When I need support, I’m glad I can count on CreakyJoints to be there for me. CreakyJoints parent organization, the Global Healthy Living Foundation, jumped into action and launched a Covid19 patient leadership council and support program, available at GHLF.org. Additionally, I can find community day or night on their social media channels, log my symptoms into the ArthritisPower mobile app and participate in their monthly #CreakyChats,” added Mr. Kuluva. 

Event Details

The Tumbler and Tipsy by Michael Kuluva virtual show will premiere at 8:00 p.m. on September 16, 2020 on YouTube: http://www.virtualfashionshow.net/

Before the show, Michael Kuluva will participate in a live #CreakyChat on Twitter (@CreakyJoints) to answer questions about his collection and living with arthritis, particularly during the pandemic. Join the #CreakyChat at https://twitter.com/CreakyJoints on September 16, 2020 at 7pm E.T.

CreakyJoints co-founders Seth Ginsberg and Louis Tharp said, “Every year, we’re surprised and inspired by Michael’s Tumbler and Tipsy collection, which is always inclusive without sacrificing fun or style. We congratulate him on his forthcoming premiere and look forward to continuing our relationship with him because he sets an important example of how to live and live well with rheumatoid arthritis.” 

About Rheumatoid Arthritis

Rheumatoid Arthritis (RA) is a chronic inflammatory disease that causes pain, stiffness, swelling and loss of function in the joints throughout the body, but typically the small joints of the hands and feet. RA can strike at any age and, if left untreated, can cause joint damage and even permanent joint destruction or harm to the body’s organs. RA is an autoimmune disease that is treated typically by a specialist called a rheumatologist.  Read more about managing RA in “Raising the Voice of Patients: A Patient’s Guide to Living with Rheumatoid Arthritis,” available for free download at http://creakyjoints.org/patientguidelines.

About Tumbler and Tipsy

Anchored by the creative mind and brilliant talents of professional figure skater turned fashion designer, Michael Kuluva, Tumbler and Tipsy is not only reworking, redefining and revamping the world of fashion but is taking it over with his sexy yet stylish brand.  Tumbler and Tipsy is produced in Los Angeles, CA with colorful collections that are distinctive but never repetitive, chic and classy while being comfortable and versatile.  Tumbler and Tipsy is not just a line of clothing, it’s a collection of art, it’s an embodiment of chic fashion in the modern world, and it’s a representation of a lifestyle: fun, bold, luxurious and daring. www.tumblerandtipsy.com

About CreakyJoints®

CreakyJoints is a digital community for millions of arthritis patients and caregivers worldwide who seek education, support, advocacy, and patient-centered research. We represent patients in English and Spanish through our popular social media channels, our websites www.CreakyJoints.orghttps://creakyjoints.org.eswww.creakyjoints.org.au, and the 50-State Network, which includes more than 1,500 trained volunteer patient, caregiver and healthcare activists. 

As part of the Global Healthy Living Foundation, CreakyJoints also has a patient-reported outcomes registry called ArthritisPower® (ArthritisPower.org) with more than 28,000 consented arthritis patients who track their disease while volunteering to participate in longitudinal and observational research. CreakyJoints also publishes the popular “Raising the Voice of Patients” series, which are downloadable patient-centered educational and navigational tools for managing chronic illness. It also hosts PainSpot(PainSpot.org), a digital risk assessment tool for musculoskeletal conditions and injuries. For more information and to become a member (for free), visit www.CreakyJoints.org.

Find us on social media:

Facebook: https://www.facebook.com/creakyjoints and https://www.facebook.com/GlobalHealthyLivingFoundation/

Twitter: @GHLForg, @CreakyJoints, #CreakyChats

Instagram: @creaky_joints, @creakyjoints_aus, @creakyjoints_esp

TikTok: globalhealthylivingfnd

Tumbler and Tipsy

WHAT:

Michael Kuluva And Tumbler And Tipsy Debuted Its 2019 Spring / Summer Collection With Celebrities, Influencers And Royal Family Members As Noticeable Models

WHEN:

Tuesday, September 11th 2018

WHO:

Michael Kuluva, Amanda Lepore, Olympian Mirai Nagasu, Sumer Rayne, Portuguese entrepreneur Betty Grafstein, Gustavo Rocha, Tulio Rocha, Alex Mapeli, Savannah Kennick (“Arrested Development”), Xuitcasecity (Recording Artists), Jose Castelo Branco, Skye Tunes, Broderick Hunter, D’Andra Simmons (“The Real Housewives of Dallas”) Jennifer Lynn DeCllis (Miss New Jersey) and more.

Last week in New York, Michael Kuluva, international designer and creator of the Tumbler and Tipsy fashion line, displayed for many, his new 2019 Spring / Summer collection with a full runway show at Style360 New York Fashion Week. Returning this year for his 8th consecutive year, Michael’s collection was one that incorporated both inspiration from street artists and the colorful and exciting motif that has always been true to the Tumbler and Tipsy brand.

Michael displayed his collection to a full house with the assistance of close celebrity friends and associates including musical act Xuitcasecity, transgender icon and international model Amanda Lepore, Mirai Nagasu (Olympian Figure Skater and US Figure Staking Champion), Dalilah Muhammad (2016 Olympic Gold Medalist) as well as international Brazilian influencers Alex Mapeli, Gustavo Rocha and Tulio Rocha (14 Million followers on Instagram combined).

Celebrity guests who were in attendance include Savannah Kennick (“Arrested Development”) Skye Tunes, Broderick Hunter, D’Andra Simmons (“The Real Housewives of Dallas”) Jennifer Lynn DeCllis (Miss New Jersey) and more.

In addition to the street style collaborations, Michael Kuluva designed a special line with CLIQ Jewelry. n 2016 and in collaboration with CreakyJoints®, the digital, patient-driven arthritis community, Michael spoke out about his experience with Rheumatoid Arthritis and has now prepared a special accessory line for Tumbler and Tipsy consisting of jewelry with CLIQ technology. CLIQ Jewelry, a Philadelphia-based jewelry manufacturer, understands that traditional rings must be large enough to pass over the knuckle, causing them to twist, turn and slip off. Their CLIQ technology allows rings to open and close around the base of the finger to fit perfectly and comfortably.

Image credits:

@reginalynnvisuals and @premium_paris

About Tumbler and Tipsy

Anchored by the creative mind and brilliant talents of professional figure skater and fashion designer, Michael Kuluva of Tumbler and Tipsy is not only reworking, redefining and revamping the world of fashion, but is taking it over by storm one sequin at a time. This sexy yet stylish brand, which is produced in Los Angeles, CA, is a colorful collection that is distinctive but never repetitive, chic and classy while being comfortable and versatile. Tumbler and Tipsy is not just a line of clothing, it’s a collection of art, it’s an embodiment of chic fashion in the modern world, and it’s a representation of a lifestyle: fun, bold, luxurious and daring.

Why Some Women are Delaying Pregnancy

New Survey Shows Women Lacking Information for Informed Healthcare Decisions

New findings from a recent survey show that women living with chronic inflammatory or autoimmune disease feel they don’t have enough information to make informed decisions about how to balance pregnancy with disease management. Some women feel they have no choice but to stop treatment or delay their plans for pregnancy. These women are living with a variety of autoimmune conditions including rheumatoid arthritis, psoriasis, psoriatic arthritis, ankylosing spondylitis and Crohn’s disease.

Now, a new initiative called the AIM (Autoimmune Motherhood) Movement is being launched to rally these women and provide support, information and a place for them to share stories about motherhood with chronic inflammatory disease. The education campaign and online community aims to help women learn the facts about their conditions and appropriate disease management options, while allowing them to share experiences to empower one another.

AIM Survey Shows:
• Almost half (44%) of U.S. women surveyed had concerns serious enough that they delayed their plans to become pregnant
• 61% believed they could not combine treatment and breastfeeding
• Only 41% consulted a healthcare professional before becoming pregnant, suggesting the need for women to become more engaged in treatment and pregnancy planning earlier

Dr. Grace Wright, rheumatologist at New York University Langone Medical Center is interviewed about the topic along with patient Rosanna, who shares her compelling story of living 30 years with rheumatoid arthritis and the physical and emotional challenges she endures while dealing with her disease. Both guests will help bring awareness to the issues surrounding ways to manage chronic inflammatory disease throughout the family planning journey. They’ll also reveal the results of the AIM Patient Survey to help others in similar situations make the best decisions for themselves and their families. See the recent interview down below:

Why Some Women are Delaying Pregnancy

New findings from a recent survey show that women living with chronic inflammatory or autoimmune disease feel they don’t have enough information to make informed decisions about how to balance pregnancy with disease management. Some women feel they have no choice but to stop treatment or delay their plans for pregnancy. These women are living with a variety of autoimmune conditions including rheumatoid arthritis, psoriasis, psoriatic arthritis, ankylosing spondylitis and Crohn’s disease.

Now, a new initiative called the AIM (Autoimmune Motherhood) Movement is being launched to rally these women and provide support, information and a place for them to share stories about motherhood with chronic inflammatory disease. The education campaign and online community aims to help women learn the facts about their conditions and appropriate disease management options, while allowing them to share experiences to empower one another.

AIM Survey Shows:

  • Almost half (44%) of U.S. women surveyed had concerns serious enough that they delayed their plans to become pregnant
  • 61% believed they could not combine treatment and breastfeeding
  • Only 41% consulted a healthcare professional before becoming pregnant, suggesting the need for women to become more engaged in treatment and pregnancy planning earlier

On Wednesday, July 11th, join Dr. Grace Wright, rheumatologist at New York University Langone Medical Center and patient Rosanna, who shares her compelling story of living 30 years with rheumatoid arthritis and the physical and emotional challenges she endures while dealing with her disease. Both guests will help bring awareness to the issues surrounding ways to manage chronic inflammatory disease throughout the family planning journey. They’ll also reveal the results of the AIM Patient Survey to help others in similar situations make the best decisions for themselves and their families.