Posts tagged with "Multiple sclerosis"

RACE TO ERASE MS

29TH ANNUAL RACE TO ERASE MS GALA RAISES OVER $1.4 MILLION

Annual Event Featured a Tommy Hilfiger Adaptive Fashion Show and Musical Performance by Nile Rodgers & Chic

On Friday, May 20, Multiple Sclerosis (MS) advocate and Center Without Walls founder, Nancy Davis, welcomed guests to the Fairmont Century Plaza for the 29th Annual Race to Erase MS Gala.  The event raised over $1.4 million to benefit the Race to Erase MS and its Center Without Walls program, a collaboration of top MS research centers working together as a team on ground-breaking research with the goal of treating and, ultimately, finding a cure for MS. The star-studded event featured a performance by Grammy Award-winning composer, producer, and guitarist Nile Rodgers and Chic. Additionally, Tommy Hilfiger presented its latest adaptive collection in a fashion show at this year’s gala. First launched in 2017, the adaptive line features innovatively designed clothing that makes dressing easier for adults and children with disabilities. 

Guests at this year’s event included Race to Erase MS Founder Nancy Davis, performer Nile Rodgers & Chic, Fashion Designer Tommy Hilfiger, and special guests Alan Bersten,  Anna Trebunskaya, Angela Lewis, Ashley Alexiss, Austin Aaron, Brandee Evans, Candace Nicholas-Lippman, Christine Devine, Crystal Kung Minkoff, Cybill Shepherd, Daniella Karagach, Darone Okolie, David Faustino, Dawnmarie Deshaies, Deacon Phillippe, Dorothy Lucey, Ed Begley Jr., Ellie Zeiler, Emma Kenney, Emma Norton, Emmett Hunter, Frances Fisher, Francesca Capaldi, Garcelle Beauvais, Gigi Gorgeous, Greg Germann, Greg Phillinganes, Hero Hunter, Inde Navarrette, Isaac Boots, J. Mallory McCree, James Tupper, Jason Lewis, Jay Huguley, Jen Kober, Joely Fisher, Joey Zauzig, Kathy Hilton, Katie Cassidy, Lauren Ash, Madison Grace, Michael Campion, Pasha Pashkov, Samantha Hanratty, Shaun Robinson, Sheree Zampino, Siedah Garrett, Taryn Manning, Tim Realbuto, Vanna White, Victoria Justice, Vivica Fox, and more! 

The evening began with a Tommy Hilfiger Adaptive fashion show with models of all abilities on the runway highlighting TOMMY HILFIGER’s innovative line of clothing. The collection features discreet modifications – such as one-handed zippers for easy closure, seams that open to accommodate prosthetics and seated wear designed for wheelchair riders. Each piece is designed to make dressing easier, without sacrificing style or quality. Tommy Hilfiger Adaptive’s mission is to make fashion accessible to everyone so they feel empowered to express themselves through the clothing they wear.

Race to Erase MS founder Nancy Davis took the stage next, thanking guests for being in the room to celebrate the 29th Annual Gala.  She shared her excitement to be back at the Fairmont Century Plaza and spoke of the incredible accomplishments of the organization over the years, including raising over $50 million for Race to Erase MS and its Center Without Walls program. Nancy also thanked her family for the love and support they have provided her to achieve this important goal.

Kathy Hilton, Garcelle Beauvais, and Crystal Minkoff introduced the luxurious live auction, which featured one-of-a-kind opportunities including lunch with The Real Housewives of Beverly Hills themselves – including Kathy Hilton, Sutton Stracke, Dorit Kemsley and Garcelle Beauvais, a Four-night Stay at the Fabulous Four Seasons Resort Maui, a Four-night stay at the Little Nell & Aspen Skiing Company in Aspen, a recording session with Nile Rodgers, a one-of-a-kind NFT, and more.  The big item of the night was a Lars Beusker limited-edition panther photograph, which sold to the highest bidder for $39,000. 

Vivica A. Fox, Taryn Manning, and Tim Realbuto took to the stage to introduce a video about Race to Erase MS and the research done at the Center Without Walls. Singer-songwriter Siedah Garrett then introduced the musical guest for the evening, legendary performer Nile Rodgers & Chic, who brought down the house playing hits “Dance, Dance, Dance,” “We Are Family,” “Le Freak,” and many more.

In what has become a Race to Erase MS tradition over the past 29 years, an uplifting rendition of “Lean On Me” was performed as the finale of the evening, led by Siedah Garrett, with help from Greg Phillinganes. They invited audience members to join them onstage, alongside Nancy Davis and Nile Rodgers, to close out the special evening.

The Race to Erase MS is honored by the gracious design contribution for the event by Shepard Fairey and Studio Number One. The original artwork was featured in all gala communications; exclusive event merchandise featuring the design is available online at shop.erasems.org. The gala also featured www.159.gallery Los Angeles, which exclusively represents world-renowned German wildlife photographer Lars Beusker, and is represented by agent Sabine Niederberghaus. They donated the sold-out image “Panther” with edition number 1/10 from Lars Beusker’s private collection in XXL size of 94’5” (2,40 meters) for auction. The tote for the event gift bag was also sponsored by the gallery and designed by the artist himself showing one of his extraordinary images. In addition, during the gala event an exclusive showcase of 10 of his artworks were on display, with 30% of sales that evening supporting Race to Erase MS.

Race to Erase MS was founded in 1993 by Nancy Davis and is dedicated to the treatment and ultimate cure of Multiple Sclerosis. Since the Race to Erase MS foundation was created, there has been more than $50 million raised and 22 FDA approved therapies created to aggressively fight MS that have provided hope, inspiration, and resources to those in the Multiple Sclerosis community. The gala directly benefits the foundation’s Center Without Walls program, a unique collaboration between the world’s leading MS research scientists and investigators who have bolstered their individual efforts into collective action that has led to exciting discoveries in the search for a cure.

The Center Without Walls program currently includes physicians, scientists, and clinicians from Cedars-Sinai, UCSF, Harvard, Yale, Oregon Health Science University, Johns Hopkins, UCLA and USC. The Race to Erase MS Gala has been instrumental in funding pilot studies that have contributed to drugs now on the market and other very important therapies that are improving the lives of people worldwide suffering from MS. 

Davis also created the annual “Orange You Happy to Erase MS” campaign, which takes place for the entire month of May (MS Awareness Month) and adds yet another branch of fundraising for MS research.  Throughout the month, a variety of orange products, many of which are specially created for this initiative, are sold to benefit the cause and elevate public awareness about MS. 

For the latest news and information on Race to Erase MS be sure to follow on social, and join the conversation using #RaceToEraseMS and #EraseMS.

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About Race to Erase MS

Race to Erase MS was founded in 1993 by Nancy Davis and is dedicated to the treatment and ultimate cure of multiple sclerosis. Funding research is the core focus of the foundation and significant strides have been made to find the cause and cure of this debilitating disease. At the event’s inception 29 years ago, the absence of medications and therapies encouraged its involvement; the Race has been instrumental in funding pilot studies that have contributed to drugs now on the market and other very important therapies that are improving the lives of people suffering from MS.  

All funds raised support the Center Without Walls program, a unique collaboration of the world’s leading MS research scientists currently representing Harvard, Yale, Cedars Sinai, University of Southern California, Oregon Health Science University, UC San Francisco, Johns Hopkins, and UCLA. This nationwide collaboration of physicians, scientists and clinicians are on the cutting-edge of innovative research and therapeutic approaches to treat MS.  It is the hope of the Race to Erase MS that in addition to combating MS through research in a clinical environment, awareness will be created by educating the public about this mysterious disease.  Since its founding, Race to Erase MS has raised over $50 Million. 

Katie Commodore x The Untitled Space

The Untitled Space is pleased to present “Katie Commodore: Between Friends and Lovers” solo exhibition opening on November 21st, and on view through December 12, 2020.  Curated by Indira Cesarine, “Katie Commodore: Between Friends and Lovers” debuts a series of large scale erotically charged figurative tapestries, created with detailed adornments and unique embroideries, along with a number of her signature portraits in gouache, miniature watercolor paintings on ivory, as well as works on paper including intaglio etchings, metallic foil cutouts, and photogravure prints. Katie Commodore is an interdisciplinary artist who concentrates on creating intimate portraits of her friends. In 2000 Commodore received her BFA in illustration from Maryland Institute College of Art. In 2004 she obtained her MFA in printmaking from Rhode Island School of Design where she is currently an adjunct professor.

“Katie Commodore: Between Friends and Lovers”

A Solo Exhibition
Presented by The Untitled Space

THE UNTITLED SPACE
45 Lispenard Street, NYC 10013

*RSVP*
Due to COVID, there will be limited capacity inside the gallery, and guests are required to wear masks. RSVP Required via Registration Link. All RSVPs will be confirmed. Thank you in advance.
RSVP REGISTRATION LINK 

EXHIBITION ON VIEW
November 21– December 12, 2020

“Everyone is my friend and they are allowing me to be a witness to their love, which in turn is then celebrated by everyone that sees it.” Over the past few years, Katie Commodore’s artwork has concentrated on depicting real people’s sexuality, although not necessarily their sexual preferences, but rather sexuality in the broader sense. Her intimate portraits address what is it that makes them feel sexy, how they express that physically, and how it evolves over the years for them as individuals. “We change our clothes every season; our physical appearance through body modification, losing weight, gaining weight, tattoos, etc; we change our kinks and sexual preferences partner to partner, year to year.  Our sexuality, and how we feel about it, is in constant flux; the same way that we redecorate our homes, change the wallpaper and curtains, change the sheets.” States the artist on her portraits. Commodore likens this subtle change in how her friends express themselves to the way society also expresses its collective self through decorative patterns. “In a roundabout way, it can be looked at as a meter of a population’s ‘sexuality’ – the public expression of the private. Bright colors, vibrant patterns, clean lines, and minimal decoration all provide a window into the personalities that chose or created them. Historians and anthropologists often use the decorative remnants (pots, jewelry, frescos, etc.) of past cultures to gain valuable insight into the lives of the people that created them, the same sort of cultural portrait can be drawn from our design choices today.”

Throughout the years, she has focused on various mediums including drawing, painting, printmaking, textiles, and scrimshaw. She has often emphasized materials that are not considered “fine art” but were rather thought of as women’s “hobbies” and in so doing highlights their traditional merit. A majority of her artwork is portraits of her friends during their most erotic moments, acting as a celebration of personal power, beauty, and sexuality.  It is a subtle, but often rich moment that shows the kink, sexual fulfillment, and the sexual interests of those closest to her. “Any activity that helps someone express their sexuality is beautiful, to be supported, and worthy of being immortalized in art.” She states of her sexually charged portraits which depict real people in the moment, captured through private photo sessions with the artist which are used as references for her paintings or prints.

Commodore was diagnosed with Multiple Sclerosis in 2007, which forced her to adjust her artistic practice. Her diagnosis motivated her to explore ways of maintaining the vibrant patterns and detail that she’s known for while not having to rely completely on her super fine motor skills. “Right before I was diagnosed with MS my artwork got much more detailed and pattern-based, and I think that was an unconscious reaction to the fact that I was losing my super-fine motor skills. Since then, I’ve adapted my studio practice to accommodate what I can and cannot do. I don’t draw with a pencil or pen as much anymore, paint brushes are more forgiving when it comes to small hand tremors. I do much more planning and sketching in the computer. Embroidery has been a real change that allows me to maintain the compulsive marking and patterns while there’s no need for perfect hand-eye coordination.”

Her latest series of large-scale figurative tapestries are ripe with intricate details. In a continuation of her signature style she presents bold figures against dramatically complex patterns, pushing the visuals into the realm of surreal erotic fantasies. The sheer scale of the works heightens the drama in a cinematic manner with the life-sized figures taking center stage. “Tandem to creating miniatures and paintings with vivid patterns, I’ve always been interested in creating life-sized portraiture. In grad school I did a series of life-sized relief prints and over the years I’ve done several life-sized drawings that I then spent months filling in with patterns. There was always something about portraying my models in a completely relatable scale that took the image from something precious to something actually more personal, the viewer can feel their gaze and the energy in their pose, feel their weight and almost come away feeling like they know the model in real life. Several years ago, I wanted to have custom tapestries made to reference the historical value of tapestries while giving tribute to the fact that often women were the actual makers of the tapestries which were usually designed by men. My digitally woven textiles start out as drawings in my computer. Like my works on paper, the patterns are historical wallpaper and fabric designs that range from the medieval to contemporary examples. I embroider on them, adding appliques (chine collé, if you will), bejeweling and beading away for hours, turning them into monoprints. I’m creating something new that combines the immediate gratification of print on demand fabricated works with the meditative, time consuming craft of embroidery and fiber arts. I juxtapose mass-produced elements with the uniqueness of each piece, elevating each patch and plastic bead to something more substantial.” She also introduces a number of text works in fiber that complement the series with their adventurously powerful statements.

Katie Commodore has exhibited throughout the United States and Europe, including England, Italy, Germany, and Greece. She has had solo exhibitions at Baby Grand, NYC, and SHAG, Brooklyn. Her work has been previously featured in a number of group shows presented by The Untitled Space including “(Hotel) XX” at Spring/Break Art Show, “IRL: Investigating Reality” and “Secret Garden”. Other notable exhibitions include “FEMME” presented by Spoke Art and Juxtapoz Magazine, SCOPE Art Fair, “StitchFetish 6” at The Hive Gallery, and “Facing the Walls” at The VETs Gallery. Residencies include ChaNorth, Pine Plains, New York; Red Light Design, Amsterdam, Holland; and One Night Residency, London, England. She is currently the Administrative Director of Crux, LCA, a cooperative of Black XR Creatives and Producers that focuses on Black storytelling and creating a foothold in the burgeoning vocabulary of new media of VR and creating Black wealth. Commodore has been featured in a number of publications including The New York Times and Dazed Digital, among others. She currently lives and works in Providence, Rhode Island.

Ways to cope with multiple sclerosis

Being diagnosed with multiple sclerosis can come as a shock to some but a relief to finally receive answers for others. MS is a chronic disease where the central nervous system is greatly affected. No two people share the exact same symptoms, and these can come and go. Some people have regular attacks, while others constantly suffer for extended periods of time. Continue reading for suggestions on how to cope with specific MS symptoms.

Blurred Vision

Blurred vision can be a very frustrating symptom as it affects most of your day to day living. Resting your eyes can reduce the strain, so ensuring you have regular breaks throughout the day and get plenty of sleep will help. Furthermore, avoiding too much screen time will help. That means that working long hours on a computer is not helpful and staring at your phone should be kept to a minimum.

Loss of balance and poor coordination

Loss of balance and poor coordination can be incredibly debilitating as it stops you from completing many tasks you probably have taken for granted most of your life. Things such as getting out of bed, standing up and climbing stairs all of a sudden seem to become almost impossible and carry the risk of injury. Risk reduction is the major thing to support you in coping with this new-found issue. Avoid carrying out any sort of activity in the dark as that strains your body more and adds further risk. Sensible shoes are a must, so choose ones with a low heel or even walking shoes. Walking with a stick can help too. 

Extreme fatigue

Extreme fatigue will come and go with MS. One day, you may feel able to conquer the world and the next, you may find merely walking to the bathroom a challenge. Prioritizing tasks is really important when it comes to your fatigue. Reserve your energy for the most critical activities. If you do feel able to engage in some of your usual activities, try to make them less strenuous to enable you to complete more. Exercise is still important, so short walks, for example, could be incorporated into your daily routine. If you are able to, take little naps during the day to perk you up somewhat. Limiting your caffeine intake may also help. 

Muscle spasms and spasticity

There are many different types of treatment and medication available to help ease the pain caused by muscle spasms and spasticity. It is always recommended that you speak with your consultant to ensure the best course of action is being followed. Some people also ultimately choose to use cannabis for medicinal purposes from somewhere like The Green Solution, who will be able to give advice on the best product to use. Physiotherapists will be able to offer a program of exercises to ensure you are able to get the most out of your day with posture and seating positions being most important. Movement is essential to ensure you continue to be as flexible as possible.

CBD is the Alternative

Multiple sclerosis, known as MS, is an unpredictable and often disabling disease that disrupts the flow of information between the brain and body. According to the National MS Society, more than 2.3 million people are affected by MS worldwide.

Celeste Miranda, CEO and founder of CBD Expo Tour and MACE Media Group, was diagnosed at 40 years old with MS and sought out CBD as a natural healing remedy. Celeste is the woman changing how the world views cannabis products and is on a mission to educate the public on the power of CBD. For Celeste, her experience with CBD and struggle with MS is a personal one. She believes that CBD is not a last result but should be the first solution.

Check out our interview below with Celeste talking about all things MS, CBD and the upcoming 2019 CBD Expo Tour.

1. Please tell us about how you were diagnosed with MS.

About eight years ago, I woke up in the morning and could not feel anything from my waist down. I could move and walk normally but when I would scratch my leg, I couldn’t feel myself doing it. I went into the emergency room and about 16 hours later, I was told that I had MS and had three lesions on my brain and two on my spine.

2. What are some of the difficulties and symptoms that you experienced with MS?

The main symptoms that I experience with MS are muscle spasticity, fatigue and brain fog.

3. What medicines or therapies did you use to treat MS before trying CBD?

I was originally prescribed two medications; one almost gave me a rare brain infection and the other wasn’t strong enough so it caused a bunch of relapses. I was also prescribed a multitude of muscle relaxers to help my muscle spasticity.

4. What brought you to seek out CBD as a cure for your MS?

I hated the feeling of being on muscle relaxers and felt like I couldn’t function while on them. I had a client at the time that was a producer of a CBD gum and he offered to send me some to try out. I would take it at the same time that I would normally have taken a muscle relaxer when I was starting to get spasticity in my legs from the MS. I tried the gum and within 10 minutes, my spacitiy went away, completely.

From there, I started researching CBD and this was as new forms started coming out – gummy bears, oils, and things like that. So I got completely off all the muscle relaxers and to this day, I am only on my monthly infusions of Tysabri and CBD.

It took me a lot of research and time to learn the correct dosage for my body. In the morning, I do a smaller dosage and then in the evening, when I know my spasticity usually gets bad, I’ll take a larger dosage. I’ve got it extremely dialed in and those are the only two things I am currently on; the tysabri and CBD. Hopefully, one day we’ll know that it helps enough in lesion prevention that I can get off the Tysabri but for now I am on both and am thrilled because I am no longer on muscle relaxers.

5. What was your doctors reaction to you taking CBD?

The doctors knew from the beginning how I got off the muscle relaxers but they originally did not say much. About three years ago, my doctor at Stanford called me and told me that they had gotten approved for research on MS and CBD and needed my help to get it off the ground. Within two weeks, we were making a bunch of noise and had money coming in to reach the $150,000 goal. At that point, my doctor called me and told me to stop immediately. When I asked why, she told me that Stanford had just lost one of their biggest financial contributors over this and that she had no choice in the manner. To say the least, for the last three years I have been a patient at Cedars-Sinai. I guess in the end, money talks.

6. Tell us about your background and how your experience with MS & CBD ties into your career in the cannabis industry?

Ironically, it all happened at the same time. I had switched my marketing firm from “mainstream” to cannabis shortly after being diagnosed with MS. They were unrelated, but the timing was close.

7. Tell us why you started CBD Expo?

For me, it is personal and the whole purpose of the CBD Expo Tour is education. There are so many questions surrounding CBD and people are very confused about it. Our main goal is to provide education and also to get exposure to some of the products that we think are the best ones out there.

8. What is CBD Expo?

CBD Expo is not like your normal trade show – we focus on both the medical and education sides of our event. We are not a fly by night company, we are here for the long run. We chose our locations for the 2019 Expo strategically because we want to create a surge of knowledge into these communities. So for example, our next conference that is coming up, CBD Expo Midwest in Indianapolis, was chosen because we saw a large amount of sales coming from Indiana from our first show in the West. We took a poll from our exhibitors and it turned out that 70% of their sales were from Indiana. After finding this out, it only made sense to choose this region as our first destination for our 2019 tour.

9. What are the main highlights for the 2019 CBD Expo Tour?

All of our locations are themed and contain panels and carefully selected presentations to create a well-rounded show and meet the needs of each region.
-CBD Expo Midwest (Indianapolis, IN – March 15-16, 2019) focuses on CBD 101: Basic CBD Knowledge and Industry Trends.
-CBD Expo South (San Antonio, TX – June 28-29, 2019).
-CBD Expo Mountain (Denver, CO – October 11-12, 2019) focuses on compliance, regulation, investments and business.
-Cannabinoid + Natural Products (San Diego, CA – December 5-6) focuses on cannabinoid research and cannabinoid formulations.

We are very excited to for CBD Expo Tour 2019 and would like to encourage anyone who is interested in learning more about CBD from experts in the field or launching their own CBD business to join us. More information on the 2019 CBD Expo Tour can be found at http://cbdexpo.net/.

Check out Flawless CBD for an array of products.